Scottish based patient information, support and advice on psoriasis and psoriatic arthritis. Treating psoriasis and psoriatic arthritis – a booklet for patients and carers from SIGN. Psoriasis Scotland Arthritis Volunteers Link (PSALV) is no longer operating as a charity, but is still providing patient information. They are looking to work with a small group of people who have psoriasis over a period of time, with the group helping to set the agenda for the programme at the outset and act as the ‘patient conscience’ for the company in this area. Psoriasis and psoriatic arthritis support group and discussion community. Scottish Medicines Consortium (SMC) accepts Stelara for use within NHS Scot. About Psoriasis Scotland Arthritis Link Volunteers (PSALV) PSALV/Psoriasis Scotland is a peer led Scottish charity for people with skin psoriasis and/or psoriatic arthritis. The negative impact of psoriasis and psoriatic arthritis on health-related quality of life has been shown to be comparable to other medical conditions, such as cancer, depression, diabetes, and ischaemic heart disease. Although, the GDG was unable to identify any good quality studies on the effectiveness of psychological therapies or stress management in this group of patients, assessment of depression and other psychosocial issues should be included in the annual review, with referral to mental health services as appropriate.
Downie: Also, I think that if people know about the Group and they know where you can get the information, so somebody like me that got hip replacements in their thirties and I’ve got a son who’s 22 with him knowing about ankylosing spondylitis because even something as simple as posture, you find out all that information, so you can avoid problems like having to get hip replacements knowing the right physio, the right exercise, the right medication, where you can stay in work longer and things like that. Now, I mentioned the link between AS and psoriasis, or psoriatic arthritis. Janice Johnson helps run a small Scottish charity, PSALV. It stands for Psoriasis Scotland Arthritis Link Volunteers. There are four self-help support groups meeting regularly in Arbroath, Brechin, Carnoustie and Forfar. Cerebral Palsy impacts on people’s ability to walk, move, talk, eat and play. PSALV ), Psoriasis Scotland, Arthritis Link Volunteers ( PSALV ) provides Scottish based patient information, support and advice on psoriasis and psoriatic arthritis. Young people develop the illness in their teens or twenties. Would you like any support? (Panel 3 lists some helpful groups and websites that patients can be signposted to. Psoriatic Arthropathy Alliance (www.paalliance.org; tel 01923 672837) offers free inclusion into a confidential database of friends and supporters, and free informational leaflets for patients and professionals. Psoriasis Scotland Arthritis Link Volunteers (www.psoriasisscotland.org.uk;
According to the experts, I may be one of those people cursed with the winter blues, a milder form of Seasonal Affective Disorder, or aptly, SAD. To have severe psoriasis and psoriatic arthritis is no less than a nightmare, she says. Edinburgh-based support group Psoriatic Arthritis Liaison Scotland (PALS), which recently changed its name to the Psoriasis Scotland Arthritis Link Volunteers, or PSALV. Brain IAC (Brain Injury Awareness Campaign) is a group of people with their own individual stories, who are all on the same mission – to improve things for the future. Janice Johnson, Founder of Psoriasis Scotland Association Link Volunteers, who have long campaigned for greater recognition of psoriasis commented, We at PSALV patient group and all 114,000 people in Scotland with skin and joint psoriasis (known as psoriatic arthritis) are delighted that our own Public Health Minister Michael Matheson MSP, amd the Scottish Government, are supporting the WHO Resolution. MSP, amd the Scottish Government, are supporting the WHO Resolution.
Transcript Programme 34: Ankylosing Spondylitis, And The Patient Perspective