If you have psoriasis, or if you know someone who does, then this site is for you. On Facebook and Twitter. There’s more to Facebook and Twitter than quizzes and funny cat videos. This online community caters to a younger MS population and has over 7,000 members in its speakeasy forum. Other dermatology advocacy organizations you may find helpful: National Psoriasis Foundation, Urticaria UK and UNEV (Urticaria Network e. The National Psoriasis Foundation has grown to be the largest psoriasis patient advocacy organization in the world. Create a community of 1,000 people with psoriasis and psoriatic arthritis who collaborate in research;.
Connect with the psoriasis community and find people like you. Many people with psoriasis, along with the family and friends who support them, are on social media sites, including the psoriasisSPEAKS Facebook page. Psoriasis is an immune-mediated disease which affects the skin and joints. When it affects the skin it commonly appears as red scaly elevated patches called plaques. A response to closing the Psoriasis 360 facebook page – Articles Due to many questions about the closure of the Psoriasis 360 page, former Janssen employee Alex Butler provides his response and thoughts on where pharma goes from here. An understanding of how people communicate personally on the internet, build communities and collaborate, sometimes for the good of the broader community, and often for the advancement of science and medicine, has not gone unnoticed.
The Psoriasis Association
A policy reversal by Facebook is opening up pages owned by pharmaceutical companies to Wall commenting, but some companies are deciding to leave the site. Most of the open pages would be focused on companies themselves or on disease or patient-specific communities, which then have ties to the companies’ prescription products. Johnson & Johnson sells the ADHD drug Concerta, psoriasis drug Stelara and arthritis drugs Simponi and Remicade.