Interactive forum offering support groups to people suffering from psoriasis. Alopecia UK provides information, advice and support for people with alopecia. Interactive forum offering support groups to people suffering from psoriasis. Changing Faces provides support and represents people who have disfigurements of the face or body from any cause.
We are the UK’s largest charity working with and for all people who have arthritis. The official UK patient support group for people with Behet’s disease. To provide an open forum for Scoliosis surgeons, Scientists and Health Care Professionals to engage in debate about scoliosis aetiology, pathogenesis and treatment and the presentation and encouragement of scoliosis research. Healthline’s Rheumatoid Arthritis centre features an interactive guide as well as the latest RA news and advice. Dermatology Online with Interactive Technology DOIT consists of three modules to instruct the basics of Dermatology using a problem-based learning approach: CyberLecture – a virtual lecture text and atlas, CyberTrainer – an interactive clinical training program, and CyberForum – a discussion platform with tutors. A new national advocacy group for people with skin disorders. The Eczema Society of Canada aims to meet the needs of those suffering with eczema by providing support and information to both patientsand the medical community. A self-funded friendly Psoriasis forum with a good mix of information, book links, online psoriasis score testing, psoriais patient stories, and regular news. Patient Information Forum. Psoriasis is a common condition affecting 1.8 million people in the UK. The Working Group contains patients and healthcare professionals, including Clinical Psychologists, Pharmacists, GPs, Medicines Managers and Consultant Dermatologists, as well as representatives of the British Dermatological Nursing Group and the Primary Care Dermatology Society. The campaign website includes tips for speaking to a GP, interactive tools about medicine use, a film and personal stories about coming to terms with living with Psoriasis, and answers to common patient questions about psoriasis.
International Federation of Psoriasis Associations (IFPA). Support JRHS in its mission of supporting patients with Rheumatoid Arthritis and. 2012. Supporting development and implementation of interactive forum for prostate cancer patients. The organizations and programs listed here can provide patients and their families with information about and support services for psoriasis, vitiligo, eczema/atopic dermatitis, and scleroderma among others. Visitors can also post messages on a community Web forum, and look for in-person support group meeting information in their area. OrgSince 1968, the National Psoriasis Foundation has been the nation’s leading nonprofit organization serving people with psoriasis and psoriatic arthritis, providing a voice for all who are affected by these diseases. WebMD offers news, support groups, and interactive tools for a wide range of diseases and conditions, including psoriasis. An unmoderated forum for people with psoriasis to share experiences, problems, ideas, and humor. Online support group for sufferers of this disease.
Patients In Rheumatology
A forum where patients, their families, people in the medical profession, can openly exchange experiences and information about the medical condition, DH. A comprehensive online eczema resource brought to you by the American Academy of Dermatology. Support group for those suffering from an unknown skin condition related to parasites. Also offers interactive forums and monthly bulletins. Annual day specially dedicated to people with psoriasis/psoriatic arthritis. To help you quickly find a support group, please browse the list below. Psoriatic Arthropathy Alliance Raynaud’s & Scleroderma Association Trust Scleroderma Society Shingles Support Group Telangiectasia Self Help Group Terrence Higgins Trust Tuberous Sclerosis Association Vitiligo Society Wessex Cancer Trust Marc’s Line (Melanoma and Related Cancers of the Skin). The Acne Support Group provides information and support to anyone affected by acne or rosacea. Aims CancerBACUP aims to help people live with cancer by providing up-to-date information and support. The clinic is an online forum, please contact us if you’re unsure how it works! Clinical experts answered questions about issues surrounding eczema, sensitive & dry skin, psoriasis, acne, rosacea and many other skin conditions, as well as offering advice on caring for your skin and you can read the questions and answers in this clinic by clicking the blue Go to this Online Clinic’ button above. With more than 8 million people in the UK suffering with some form of skin disease; the BSF aims to fund the research that is vital for a better understanding of the numerous conditions that blight the lives of so many. Nottingham Support Group for Carers of Children with Eczema (NSGCCE) is a voluntary group made up of carers of children with eczema, those with eczema and healthcare professionals. The Ichthyosis Support Group (ISG) was established in 1997, and is the only UK registered charity providing support to individuals and families living with all forms of ichthyosis. The ISG is run by small team of volunteers and a part time employee, nearly all of whom are directly affected by ichthyosis. Information, support and advice can be accessed via a telephone helpline 0845 602 9202, email, website, interactive Facebook page and Twitter. Links to disability websites that offer services for disabled people, the elderly and people with healthcare Issues. Provides information on the cause, symptoms, and pain relief for arthritis sufferers. A contact group, a support group and an information hub for those affected by degos disease. Popular interactive Forum site on deafness and sign language issues.
Our Giving: Organizations
DailyStrength – 500+ Free Support Groups bringing people together to share support, treatment experiences, information, stories, and photos. HealthBoards.com – Health related message boards offering discussions of numerous health topics. Crohn’s Disease – We are a community of people whose lives are affected by Crohn’s Disease, Ulcerative Colitis, other forms of Inflammatory Bowel Disease (IBD). Visit the interactive forums and blogs to find support and share information. They are sponsored by professional associations, patient groups and the federal government. A not-for-profit organization providing support for patients with intractable pain, their families, friends and physicians. This group is revolutionizing access for millions of people with disabilities, their families and friends through print, interactive, broadcast and wireless communications. An Internet forum for Parkinson’s patients and caregivers. Get information on support groups, outreach programs, online communities, and more. There are plenty of resources available online that can offer support and help you connect with others who are living with your condition. CreakyJoints provides treatment information, advice from professionals, and public forums for people living with arthritis to share their experiences. Living With Psoriatic Arthritis is a dedicated support community for families affected by Psoriatic Arthritis. Telephone and email helpline service for those affected by psoriasis or psoriatic arthritis. This includes a selection of leaflets and factsheets as well as an interactive CD-ROM for children. Informative websites, Forums, Facebook groups, regular Awareness Days throughout the year, Annual Conference in May and Psoriasis Awareness Week in November. We facilitate high quality service delivery to callers by providing services, including training, contact solutions, a Helplines Quality Standard, tailored support and information resources.
Dewke: When did you start alt.support.skin-diseases.psoriasis, and why? In Internet culture, a lurker is typically a member of an online community or PLN who observes, but does not actively participate. Soroka and Raffaeli found that people that lurk longer before posting had greater levels of cultural capital. By analyzing the Open University of Israel online forums and two IBM ReachOut online communities, Soroka and Rafaeli found that as users’ cultural capital of an online community increases, their amount of activity increases, and they have a higher likelihood of de-lurking.